Posts under ‘Ashleigh’s Transplant’

She speaks!

Ashleigh can talk again now!! They put a valve in her trach that allows her to talk now. She’s also off the ventilator; in fact, they’ve completely taken it out of her room! They’re still working on building up her strength. She can sit on the edge of the bed on her own, and sit [...]

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Ashleigh is devouring everything in sight!

Since the last post on Ashleigh, she continues to defy the odds! She is nearly off the ventilator; the only thing it is doing for her now is pressure support and she is doing the rest. She is still having trouble with that one spot on her upper right lobe (it looks as if that [...]

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"This is my favorite pop"

We visited Ashleigh on Saturday with Mom, and we actually visited and “talked” with her. She responds with facial expressions, gestures, mouthing words, and lots of writing notes on the small white board. She’s still going through some withdrawal symptoms (from the fentanyl, etc.), but when we were there we got her to smile a [...]

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"There’s a jelly fish in her lung!"

A few posts ago I mentioned that Ashleigh’s lungs were in trouble: the doctors saw lots of white space on the x-rays and thought that a piece of her upper right lobe had died. As they were preparing to decide whether to take that piece out they discovered that it was just a mucus plug. [...]

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Ashleigh is doing fantastic!

I just talked with Mom, who is very excited about Ashleigh’s progress. She’s still off the anti-rejection drugs and even though her immune system has kicked back on it hasn’t rejected the liver nor has she gotten any new infections! The doctors continue to turn down the ventilator and they hope to start taking her [...]

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Ashleigh on a rampage!

Holy cow, Ashleigh was MAD today. Not just mad, but furious! (side note, if you’ve been around her you know how much she hates doctors and being poked. Apparently they poked a little too much today.) She attempted to escape from her bed and even pulled out her pic line. Yikes! Good thing Dad was [...]

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We are now giving Ashleigh the nickname Lazarus…

…because God has brought her back from the dead! Many of you have heard through the grapevine already that we nearly lost Ashleigh on Friday (5/23). She had come down with another virus called CMV earlier in the week. They gave her treatments for this virus but on Thursday night they decided that Ashleigh was [...]

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