Ashleigh has been home for several weeks and continues to improve. The doctors are still working on correcting her medication dosages and Ashleigh has yet to restart physical therapy, but she’s in good spirits and is able to do more each day. She’s well enough now that she can drive occasionally!
The doctors are planning to send Ashleigh home this Thursday! Physically, she’s back to the level she was at the last time she went home; she’ll have daily physical therapy and rounds of medicine to continue until she gets her strength back. Mom told me today that all the kids and nurses dressed up for [...]
Ashleigh has been home for a few weeks now and has been improving by leaps and bounds. She’s been walking on her own and going to physical/occupational therapy each day. Last week she developed a staph infection (which is not unusual for her because she has MRSA in her lungs permanently because of the CF). [...]
Mom just called and said that she and Dad are on their way home from the hospital with Ashleigh! It has been nine long, *difficult* months, but with God’s help she has triumphed. Ashleigh is back on her feet again, but still has months of physical and occupational therapy ahead of her. She’ll still need [...]
To this point Ashleigh has only been able to get out of bed to stand and pivot and sit down in a chair. Today she walked 13 steps using a walker! This is the very same Ashleigh that we nearly lost on Memorial Day weekend. Praise God!
This past Saturday we drove up to KC to visit Ashleigh. She is still at Children’s Mercy but at least has her own room now. When we arrived she was finishing a breathing treatment and getting ready for her splurge lunch, including a plate of onion rings from the cafeteria (she did have cheese cubes [...]
Ashleigh is now out of PICU and in her own hospital room! She is very happy, relieved, and tired from the move up to the 6th floor. There is still a lot of physical therapy to do (since she’s been in bed for six months) but she’s steadily making progress.